COIOS
Power of data Item refines peer-reviewed

Whole-genome sequencing gave a genetic diagnosis in 4.9% of kidney anomaly cases

Whole-genome sequencing of 1,052 people with congenital anomalies of the kidney and urinary tract in the UK 100,000 Genomes Project gave a single-gene diagnosis in 4.9%, with common and low-frequency variants estimated to explain 23% of phenotypic variance.

Researchers applied whole-genome sequencing to 1,052 unrelated people with congenital anomalies of the kidneys and urinary tract recruited to the UK's 100,000 Genomes Project, testing panel-based diagnostic yield alongside rare-variant and genome-wide association analyses. The single-gene diagnostic yield was 4.9%, rising to 11.1% in cystic kidney dysplasia, with family history, consanguinity and features outside the kidney each predicting a single-gene cause. Common and low-frequency variants were estimated to account for 23% of phenotypic variance (95% CI 1-45%), and a polygenic score for posterior urethral valves was validated in an independent cohort.

Why it is interesting: A national sequencing programme puts a low figure on what single-gene testing returns in a condition long treated as largely Mendelian.

Source
Kidney International, 21 September 2026
DOI
10.1016/j.kint.2026.07.037
Type
Peer-reviewed article
Design
Whole-genome sequencing case-control analysis, 1,052 CAKUT patients in the UK 100,000 Genomes Project, with 813 cases against 25,205 ancestry-matched controls and external validation in 77 cases and 2,746 controls
Verdict
Refines prior evidence
Driver
The sources behind the numbers
Driver
Biotechnology against inherited risk and ageing